I am really in no mood today to post because work is being a big ole bitch. And tomorrow is not going to be any better. But what really tops the sundae is no frickin’ cherry. It’s my Dexcom continuously going off with false lows. Just slight ones. I’m at 82 and it’s beeping at me saying I’m 69. I’M NOT! Just stop! So I SHUT IT DOWN! Literally. Shutdown has happened. I’ll turn it back on when I get home but right now at work, I can’t handle it. I can’t handle anything! Blerg.
It’s World Diabetes Day, today! Wear your blue and tell everyone about it.
Will post more about this wonderful day next week!
Keep smiling and raising awareness for Diabetes!
Last night I woke up to find I was severely low. So low it just said LOW. Yeah, one of “those” lows. So I went to the kitchen and gulped down my 8 sips of orange juice. Usually that picks me up and I’m good to go. Apparently not last night. As you can see I was low pretty much from about 1am until 7am with a teeny tiny peak around 4am of 80. So I kept eating. Like a never ending circle, I kept eating. Crasins were my go to snack. I brought my Costco size bag to my bedroom, got back under the covers (it’s -2 here in Denver so there was no way I was staying in the cold longer than I had to) and I started watching Netflix to keep myself awake. I ate handful after handful and watched four full episodes of Hart of Dixie. (I don’t know why I chose that show in my low induced fog but I did). I was awake for easily four hours last night, shivering, low, eating an insane number of calories and carbs, and pissed off.
I don’t know how many carbs I ate. I don’t know why I was low for such a long time. But I do know I didn’t get enough sleep so before I go to bed tonight I am eating a peanut butter sandwich with a glass of milk like I use to back in the good ole days. That was my bedtime snack to help me sustain a stable blood sugar while I slept. Who knows what it really did for me, my NPH middle of the night spike, and no Dexcom back then, but it seemed to work so I’m trying it again.
***I wrote this about two weeks before Election Day but hesitated to post due to the fact I am a journalist and am suppose to be biased. Now that the election is over I feel more comfortable posting.***
Colorado is known as a purple state. We are much divided. We love our guns. We love our pot. We love and then hate and then love gay marriage. (Just pass the damn bill and let it be!) And this year’s race for Governor, Senate, and Congress is in full swing…and so are the political ads. I work for a news station so I see ads probably more often than a normal person. And yes they are annoying, usually false, and when they use a statistic about their candidate that is over 4 years old, I dismiss it completely. (Find some new “dirt” or move on!) But there is one ad that is playing a lot and it’s about type one diabetes and stem cell research. What this mother says about diabetes and her daughter really grinds my gears. Watch it here.
The claims this mother makes are ridiculous. While they are technically true, if someone ever said them to me, I would slap them. “Nine times a day she checks her blood sugars to make sure she doesn’t have seizures. “ I know having seizures is something that can happen but aren’t you checking your sugars for more than that one reason? If that was your biggest worry then hell, go ahead and let her sugars run high. Maybe she’ll just go into DKA but hey, it’s not a seizure! And then, “I know a diabetic child has a shorter lifespan.” WHY WOULD YOU SAY THAT! I know it may be true that we don’t live until we’re 95 but that doesn’t mean we won’t have healthy, happy, long lives. It just sounds so terrible when you say that we’ll die young. Like we’re missing out on a wonderful life filled with happiness. I’d hate to have a mother like that and have her tell me I’m going to die before everyone else and that I could fall over and seize at a moment’s notice.
“Who is Mike Coffman to put his personal beliefs ahead of my child’s life?” Who are you to use your daughter’s disease to bully viewers and push your agenda!?
Alright, I’m done. Just wanted to vent about it.
(These opinions are my own. I am not stating I am for or against Mike Coffman. I just know I am over this bullshit.)
After yesterday’s whiny post about basal rates I made a few tweaks and things are finally looking more normal. Still started to go up later in the morning so I tweaked that and hopefully tomorrow I’ll have even better results.
I understand changing your rates. There are times when you do so more often. You’re pregnant, on a new medication, exercise regiment is different. What I don’t get is why all of a sudden I’m high around 2 am, then dropping to about 55 at 6am and then spiking back up into the 200’s by 10am. And that’s without eating or taking any insulin.
Did my hormones all of a sudden go completely out of whack? Is my body rebelling against me even more? What the h-e-double hockey sticks is going on!?
It is beyond frustrating. I’ve been doing everything you can to stay in control, especially overnight. All I want is more than 4 hours of uninterrupted sleep without Roxy yelling at me. First it’s just a peep saying, “I’m high.” Then it moves on to, “Pay Attention to Me!” Then finally, “I SAID LOOK AT ME!”
This happened to me a few months ago and I can’t figure out if this is a similar situation or if some new factor has reared its ugly head. So after three nights of being pissed off I am changing my basal rates Again and hopefully I’ll have some success.
I imagine a Dexcom is kind of like having a baby. But when a real baby wails you can’t throw it across the room, hide it under your pillow, or ignore until you’re finally back in range.
Or in my case… Marion Street
I’m sure most people know the premise of Nightmare on Elm Street. A bunch of teenagers (including Johnny Depp making his big screen debut) are stalked and killed in their dreams (and thus killed in reality) by a severely burned man named Freddy Krueger. So to avoid being murdered in their sleep they stay awake for days. They drink pots of coffee, take caffeine pills, listen to blaring music.
Last night I woke up around 4am to a blaring Dexcom saying I was low…and man did I feel crappy. My tongue was numb, I was sweaty, vision was blurry. I popped the straw into my nightstand Capri Sun and gulped it down. Then I waited for the sugar to kick in. But waiting for your sugar to come, especially in the middle of the night when you are beyond tired, is ridiculously difficult. I just want to close my eyes and hope I drank enough carbs that will get me through to the morning. So I went to Facebook, I put on music, and I played a game of Candy Crush waiting until I felt better. I noticed another D-pal was on Facebook after dealing with her second low of the night. Her post: “The calories I consumed during my two (yes two) low blood sugars’ refrigerator binges (so far) don’t count. Right? I said right?! (I’m looking at you Halloween)”
That got me thinking. How many of us are there up in the middle of the night at the same time, and what do we all do to pass the time until we feel better? Granted there are times where I am literally sitting on my kitchen floor, eating straight out of the fridge and the only thing I can do is eat till I feel better. Then I bolus. (Don’t judge, we’ve all done it.)
What do you do to stay awake? Wake up your partner until you feel better? Walk the halls until you’re not tingly anymore? Stare at your meter and Dexcom until you see the arrow pointing up to safety? Hopefully no one is taking such drastic measures as the kids living on Elm Street but whatever it takes, right? They’re trying to survive Freddy, we’re trying to survive a low blood sugar. It’s all relative… kinda.
Oh and maybe it’s just me but after a middle of the night low, waking up the next morning is almost impossible. I usually sleep through my alarm, wake up late and then drag ass half the day. Ugh.
And for your viewing pleasure, Johnny Depp in a belly football shirt.
I started this blog one year ago today. The reason I decided to begin blogging is because I felt I had a lot to say, even if it was to no one. It would be a great place for me to vent /share my experiences/try to be funny… and practice my writing skills. Plus, I’m no good at keeping a journal and this kind of acts like a surrogate one. (Hopefully it doesn’t turn into a Gone Girl journal) And I also really wanted to become more involved in the Diabetes Online Community (DOC) and thought blogging would be a great way to join in more.
When I first started I had these grand ideas that I would be like Kerri or Kim and would post every other day or at least three times a week. I would write multiple blogs in one day, save them, and then post them when I felt they were relevant. Well sheee-at. That didn’t happen… Life did. Summer came around and instead of staying in, I’m out in the yard mowing or gardening. I’m at a bonfire with my friends drinking beer. I’m in dozens of weddings and out of town. But all that aside, even if I thought I would have written more, realistically, I think I’ve done pretty well.
I also knew starting out I would have little to zero followers. Now I had a great group that reads me on a regular basis and leaves comments that I adore! (Every time I’m notified I have one I get giddy) So far I’ve done 73 posts, received 60 comments and I’ve had visitors from 32 different countries including Singapore and Great Britain, two places I use to live. And I NEVER thought I would be read in countries such as Pakistan Israel, or Nigeria. That’s crazy!
I’ve even had the great honor of meeting a few bloggers heavily involved in the DOC such as Mike H from The Diabetic’s Corner Booth and Cherise S. who does EVERYTHING including the Diabetes Community Advocacy Foundation (DCAF). And through my blog I’ve become more involved, and let’s be honest, finally understand the impact Twitter has. (What’s a hashtag?) I now have more people following me on Twitter than I follow. I didn’t think that was possible!
As I forge into my second year of blogging I have a few goals I would like to accomplish:
- Double the amount of posts I write. I’m going for around 150.
- Take part of the Blog Carnival DSMA puts on or other blog challenges.
- Get my name out more into the DOC. I know that sounds vain but I crave approval and validation. (Don’t worry. My therapist knows all about that.)
I also like how we can turn anything into an anniversary. Blogaversary, diaversary. Let’s keep ‘em coming!
Fun Fact: Kelley over at Below Seven is having her blogaversary today as well! She turned two and is way more read than I am but hey, it’s a starting point for me and maybe next year, I’ll be as successful as her. Congrats, Kelley!
On that note, time to start writing!
When I was on shots in the good ole days, wow I sound old, I use to get bruises. Not all the time though. I would go months without any and then all of sudden I would look down and see this massive purple bruise the size of a half dollar on my stomach. It was not pretty. Then for some reason my body would go into overdrive and think, “Hey, it must be time to make Jillian look like a domestic abuse victim!” because every shot after that for the next few days would leave a mark. I would have 10 freakishly large purple and green bruises covering my stomach and legs. It looked like I was beaten by an onslaught of baseballs.
The reason I bring this up is that I’ve had to go back to shots for a few weeks and the bruises have returned. Not nearly as severe as years past but it’s been a long time since I’ve had multiple purple patches on my stomach. Sure an infusion site has hit a gusher here and there but I could probably count on one hand how many times it has actually left a bruise over the past 8 years of pumping.
I’ve always wondered what makes me bruise like that. A tiny needle hitting a capillary, sure, that happens. But for three shots in a row to do that? Seems like pretty high odds to me.
I’d share a picture of my stomach but let’s be honest; no one needs to see that. And as much as I love seeing bruises and scars, not everyone feels the same way as I do.
(And if you don’t want to leave any bruises do what Bing Crosby suggests here on Family Guy.)